CHINEDU, a man made for others
h energy and purpose, began to slow down. Not in any way that would spark immediate concern. There were no dramatic collapses, no flashing red lights, no cries for help. Just little things. I
o those who watched him closely. And
ecked in on friends going through rough times. He gave encouragement freely and never let on that anything was wrong. But those of us closest to him saw it: the hesitation, the subtle wincing when
. Chinedu had always taken pride in his resilience. He was the dependable one, the rock, the ever-present shoulder for others to lean on. The idea that he might need support himself was something he didn't allow. Not because he didn't
hispers g
s. Dizziness crept into his days, making it harder to drive, to focus, to function. There were moments when he'd reach out to steady himself without realizing. One day, his vision blurred so severely t
, something inside you panics. It shakes your sense of safety. We begged him to go to the hospital, but still, he resisted
his shoes no longer fit comfortably. His hands trembled faintly. We watched him try to hide them in his pockets or under the table. Long sleeves became a permanent part of his wa
t it grew more frequent, then daily. He couldn't hold food down. His weight began to drop. His eyes lost their us
It hung in the room during conversations. It followed us into our prayers.
in the system, in the doctors, in the specialists with degrees and experience. That's what hospitals were for-answer
ope was sh
me swiftly: sick
aveled, worked long hours, lived freely. Not once had any doctor suggested this diagnosis. Not even once. We asked questions. We pressed gently at first, then more urgently. But our concerns were dismissed. "It's common for it
prescriptions. The drugs they gave him were powerful-meant to manage chronic sickling and prevent pain cris
sed urine output. The doctors adjusted his medications, attributed everything to "progression." But soon, test after test revealed the terrifying truth: his
rtbroken. A
at Chinedu as a person, not a data point. Each hospital brought a sliver of hope, only to extinguish it under the weight of bureaucracy and assumption. We carri
im like something sacred being taken against his will. Daily transfusions became the new normal. Not as treatment, but as survival. The
ged fo
AA or O+? Please, we need help. It's for Chinedu." Some gave. Some didn't. Every donation wa
Some drugs were only available from private importers-cash only, no time for negotiations. We sold everything we c
our eyes and checked: Is he still here? And when he was, we gave thanks. But the weight was unbearable. Watching so
inedu remai
them after every painful injection. He smiled at us, even when too weak to speak. He aske
once co
e. Not even when he could no longer stand. He simply squeezed
ed, "Do you think they'll remember me?" I nodded, tears choking my throa
others. Always holding on to meaning,
me to review everything. He ordered proper tests. He listened to us. He looked at Chinedu
e cell disease. The origin
sdiagnosis.
The corrected treatments came far too late to reverse the damage. The man we loved-
n the rage. The wild, useless rage of knowing we had been right. Of knowing t
an who should have been seen. Who should have been heard. Not dismissed. Not redu
story is painful to tel
ith trust in their eyes and leave with diagnoses that don't belong to th
st speak
Chin
ill matters. Because the world did